The 15 Second
Introducing "THE 15 SECOND DANCE CHALLENGE" Raising Awareness for NEUTROPENIA!! Click here to Donate. Thank you for your support. Dancing towards a cure!!! #ejfdanceparty
Bowling 4 NeutrophilsThe Ella Jewell Foundation is excited to introduce a new, easy, fun, and exciting fundraising idea,Bowling 4 Neutrophils
Summer 2013 NewsletterSee our latest newsletter and the great strides being made in Neutropenia research. Many families are joining the effort to raise donations nationwide!
Health & WellnessTo learn about Neutropenia and see the McGuinness Family, click here. This is a special that will be airing on PBS about Neutropenia. In this special you will see Neutropenia expert, Dr. David C. Dale. The Ella Jewell Foundation donates to the research that Dr. Dale and his team lead. You will also see families, including us talking about Neutropenia.
Ella Jewell was born on September 2nd, 2009 with a rare blood disorder, Severe Congenital Neutropenia. Ella’s family feels fortunate because Ella is doing well and responding well to daily GCS-F treatments. Ella’s family wants to share their story and the stories of other families in hope to raise awareness and funds for research and to one day find a cure.
Neutropenia is a very rare blood condition that causes a reduced number or complete lack of Neutrophils. Neutrophils are a type of blood cell that defends the body against bacterial infections. Severe Congenital Neutropenia is generally present at birth. It is usually very severe since Neutrophils are completely absent. Neutrophils will not fully mature in the bone marrow therefore will not be able to fight infections. Severe Congenital Neutropenia patients benefit from GCS-F treatments.
National Neutropenia Network
Just like the Ella Jewell Foundation the NNN is also a nonprofit and is an important resource for patients with Neutropenia. NNN exists to provide support and education resources; connects patients with medical care, mentors and provides a world-class conference with the top physicians specializing in Neutropenia. In order to help mobilize our very small but mighty neutropenia community; EJF invites anyone to participate in the Long Race 4 Tate or create a fundraiser of your own and designate a portion of the proceeds to NNN. We know that the EJF, Long Race4Tate and NNN are going to do amazing things together becasue after all,
" Together, we can make a difference".